Amy Gordon

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Claremore Color: Amy Orange

In July of 2011, our family received the diagnosis that my son, Zip, had FOP. Fibrodysplasia Ossificans Progressiva is a rare genetic condition affecting...

moreClaremore’s Happy “TWO” Year!

When my daughter was little, every New Year’s she would scream “Happy TWO Year!” instead of “Happy New Year”. July 11th is moreClaremore.com’s 2nd birthday....

Zip: All Stitched Up for FOP Awareness Day

Today, April 23rd, marks the anniversary of the day the mutant gene that causes FOP was discovered. On April 23rd, 2006, the doctors discovered...

What Does Santa Look Like?

A little more than five years ago, my daughter, Arlie (11), started in tae kwon do. She will be a black belt next October if...

Comfort Zones

We all have comfort zones. Places we feel safe. Mine are at work or at home with my family. For the past three years, I have put...

Zip: How FOP Came to Be

Thursday, June 2nd, 2011, my 36th birthday. Zip came into my room in the morning. His shoulders were swollen up like the incredible hulk....

How Zip Became Zip

Well, here’s the story. In December of 2003, our daughter Arlie was born. We were a happy family of three. She is named after a...

Well Begun is Half-Done

Fibrodysplasia Ossificans Progressiva (FOP) entered our lives a little more than three years ago. It was a game changer for sure. Time is the one...

Motivation Monday: The Power of Pumpkin

Photo credit: foodal.com With Thanksgiving approaching and cooler temps arriving, along with all things PUMPKIN, why not go over the benefits of pumpkin seeds? They...

The Anniversary

Today is the 3-year anniversary of the day we learned Zip has FOP. Fibrodyspasia Ossificans Progressiva affects muscles, joints, and connective tissue, turning them to bone....

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