We’ve had the privilege recently of learning about Claremore kiddo Leyton Hull. She was born with a terminal brain condition called Holoprosencephaly, or HPE. Her parents, Jennifer and Arron, were told when Leyton was in utero that she wouldn’t survive until birth. Then they were told that she would make it, but likely wouldn’t take her first breath. I’m not sure how you even prepare for devastating news like that.
Leyton did take that first breath. And she’s about to turn three!
Due to the HPE, Leyton also deals with Diabetes Insipidus, microcephaly, severe epilepsy, hypothyroidism, and dystonia. She is not blind, but due to small nerves, she can only see lights and shadows. Even with all of this, she is beating the 1% odds she was given.
Leyton’s mom is on a mission to have the BEST birthday party ever for her little girl on Sunday, April 29. Since day one, they’ve called Leyton their little unicorn, because she’s so rare and special. Jennifer wants to host a birthday benefit with a carnival theme fit for a princess, or a unicorn! They’d like to raise money for the Hull family to travel to Ohio this summer for a conference dedicated to families dealing with HPE.
Next is finding donated items for a silent auction. Baskets, gift cards, services, anything! Other ideas to raise money would be appreciated.
They’ve got Patsy’s Sno Cones on board, as well as a dunk tank. Any other carnival games or activities that anyone could provide would be greatly appreciated! Pony rides, a magician, and face painters would all be great.
If you can provide any donations or support, please contact Jennifer Hull at firstname.lastname@example.org. You can also donate online to Leyton’s GoFundMe page. Follow along with Leyton’s journey on her facebook page HERE!
Let’s do this, Claremore!