Claremore, Here’s How You Can Help on Rare Disease Day


Perhaps you love someone who is rare, or you know someone who is, and you want to help. Wednesday, February 28, is Rare Disease Day, and it’s a great day to celebrate others and maybe help out a bit.

For Claremore’s Zip Gordon, Rare Disease Day is a big deal, as Zip has Fibrodysplasia Ossificans Progressiva, or FOP. The incredibly rare genetic disease is studied extensively at UPenn by some of the world’s finest medical minds. But it costs about $2,000 per day for the research. Donations are desperately needed to continue with the research and also to fund the drug trials that are currently underway. If you’d like to help make the future brighter for Zip, and others suffering from FOP, you can help!

Click HERE to donate to the IFOPA and help find a cure for FOP!



Latest articles

Where to See Spooky Decorations in Claremore!

Since it's not time to look at Christmas lights yet, why not drive the family around and check out Halloween decorations? Claremore resident Lori...

Watch Powerful Film “Resilience” for FREE!

The Northeast Workforce Board is pleased to partner with the Potts Family Foundation to co-host this extraordinary event in Northeast Oklahoma. The event will...

Chamber Announces Plans for 2020 “Drive-thru” Christmas Parade

The annual Claremore Area Chamber of Commerce Christmas parade looks a bit different this year with the current climate. The 2020 parade will be...

Free Outdoor Concert in Claremore: Stars Go Dim

North Park Trinity Baptist is hosting a free outdoor concert featuring Stars Go Dim on Saturday, October 24. Bring your lawn chairs to allow...

Similar articles